Common data sets

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  1. List of existing common data sets
Area Author Common data set Link to the dataset
Rare diseases EPIRARE EPIRARE common data set http://www.epirare.eu/_down/del/D9.3_ProposalforCDE_FINAL.pdf
Arthroplasty EFORT-EAR EFORT EAR Minimal datasets http://www.ear.efort.org/
Patient summary epSOS epSOS Patient Summary http://ec.europa.eu/health/ehealth/docs/guidelines_patient_summary_en.pdf
Cancer ENCR ENCR Standard dataset http://www.encr.eu/images/docs/recommendations/recommendations.pdf
Cardiology CARDS CARDS Data Standards http://www.escardio.org/Policy/Pages/data-standard-cards.aspx
Diabetes B.I.R.O. BIRO Common Dataset Summary http://www.biro-project.eu/documents/downloads/D3_1_Common_Dataset_v1_7.pdf
Neuromuscular disorder TREAT-NMD FSHD Core Dataset http://www.treat-nmd.eu/downloads/file/registries_toolkit/FSH_core_dataset.pdf
Multiple Sclerosis EUReMS EUReMS Core data set http://eurems.eu/attachments/article/93/EUReMS%20Data%20Mask_August2014.pdf


  1. Comparison of existing common data sets

Comparison of existing common data sets