Authors of the guidelines

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Authors of the 'Methodological guidelines and recommendations for efficient and rational governance of patient registries' (version 1.0) are:

1 Introduction Marija Magajne, Matic Meglič
2 Patient registries Marko Brkić, Borna Pleše, Vanja Pajić, Mladen Kostešić, Ranko Stevanović, Tamara Poljičanin, Ivan Pristaš, Metka Zaletel, Marcel Kralj
3 Interoperability Marko Brkić, Borna Pleše, Vanja Pajić, Mladen Kostešić, Ranko Stevanović, Tamara Poljičanin, Ivan Pristaš
4 Quality dimensions of registries Marko Brkić, Borna Pleše, Vanja Pajić, Ivan Pristaš, Ranko Stevanović, Mladen Kostešić, Tamara Poljičanin, Dmitri Wall, Barbara Foley, Metka Zaletel, Marcel Kralj
5 General requirements for cross-border use of patient registries Persephone Doupi, Arto Vuori, Katariina Peltonen, Antti Tuomi-Nikula, Haralampos Karanikas, Yannis Skalkidis
6.1 Planning a registry Dmitri Wall, prof. Alan D. Irvine, Eoin O'Brien
6.2 Registry research design Marcel Kralj
6.3 Registry dataset Marcel Kralj
6.4 Data sources for registries Metka Zaletel
6.5 The role of information system methodologies and techniques in the phase of Patient registry creation Vesna Lešnik Štefotič, Živa Rant, Ivan Drvarič
7 Patient registry information system development and implementation Vesna Lešnik Štefotič
8 Running a registry Óscar Zurriaga, Carmen López Briones, Miguel A. Martínez-Beneito, Clara Cavero-Carbonell, Rubén Amorós, Juan M. Signes, Alberto Amador, Carlos Sáez, Montserrat Robles, Juan M. García-Gómez, Carmen Navarro-Sánchez, María J., Sánchez-Pérez, Joan L. Vives-Corrons, María M. Mañú, Laura Olaya
9 Changing and stopping registries Marcel Kralj
10 Re-use of registry data György Surján, Károly Fogarassy